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Slide 15


  • What has struck you most about this session?

  • Thinking about what you have learnt about independent advocacy (and on any other modules you have completed so far).......

  • What links can you make between topic areas?

  • How might the necessary changes impact on your current arrangements?

  • What might the key challenges be?


  • What are your top three priorities in relation to independent advocacy?

  • Complete the action plan to identify the next steps for each priority.


Links to key resources

Action for Advocacy (2006) Quality Standards for Advocacy Schemes. Quality Standards for Advocacy Schemes is a product of the Charter in Action programme initiated by AfA in 2005. It consists of two main elements: firstly, a series of evidence-based quality standards for advocacy organisations and secondly, a code of practice for advocates. It also includes a series of training exercises designed to support groups in thinking through the issues involved in adopting the standards. Although AfA, the leading umbrella organisation for the advocacy sector in England and Wales has now closed the documents remain available

Advocacy Quality Performance Mark (2014) Advocacy Code of Practice. The advocacy code of practice and advocacy charter (2002) are available to download from the Advocacy QPM website, which enables advocacy providers to demonstrate how they are meeting the standards set out in the code.

Assist Advocacy Services in Staffordshire (no date). The Watching Brief: Working with advocates using Non-Instructed Advocacy

Bauer A, Dixon J, Wistow G & Knapp M (2013) Investing in Advocacy for Parents with Learning Disabilities: What is the Economic Argument? Discussion Paper 2860, London School of Economics. This review investigates some of the costs and outcomes of advocacy provided to parents with learning disabilities at risk of losing their children into care.

Brown G, Standen N, Khilji B (2013) Dementia Advocacy in a Time of Austerity, Coventry University, Coventry. The study draws attention to the benefits of advocacy as a means of supporting older people with dementia and illuminates internal and external challenges encountered by third sector organisations providing this type of support.

Change UR Mind Transitions Advocacy Project Available at (Accessed 26 August 2014). A project delivered by Youth Focus: North East in partnership with YoungMinds, and is funded by the Clinical Innovations Team (NHS North East). The site includes a service directory and case study material, some of which has been sourced from the Young Minds website.

Dementia Advocacy Network and Advocacy Plus (2012) Taking Their Side: Fighting Their Corner 16 Stories Demonstrating the Difference Independent Advocacy Makes to the Lives of People with Dementia, DAN, London. This book is a collection of stories about the contribution made by advocates working in different organisations and different settings including care homes, hospitals and in the community, from across the UK. The stories are written from the perspective of the advocate, with some comments from people with dementia themselves. Although the network has now closed this resource is still available.

Department for Constitutional Affairs (2007) Mental Capacity Act 2005 Code of Practice. London: The Stationery Office. The Code of Practice supports the mental Capacity Act (MCA) and provides guidance to all those who care for and/or make decisions on behalf of adults who lack capacity. The Code includes case studies and clearly explains in more detail the key features of the MCA.

Empowerment Matters Resources Available at (no date) (Accessed 21 October 2014). This website contains a wealth of resources focusing on good practice in advocacy for advocates including: Making financial decisions: Guidance for assessing, supporting and empowering specific decision making.

Equality and Human Rights Commission (2010) Research Report 67 Advocacy in social care for groups protected under equality legislation. The purpose of this study was to assess the extent to which existing advocacy provision is available for people in the groups protected by equality legislation.

Equalities National Council (2012) Stop, Look and Listen: A Manifesto for Change and Inclusion of Black and Minority Ethnic Disabled People, Their Carers and Families. A BME user-led Disabled People Organisation, committed to developing advocacy services and community programmes.

Franklin A, Knight A (2011) Someone on our Side: Advocacy for Disabled Children and Young People. This report, published by The Children’s Society Research Unit contains the findings and recommendations of a review into advocacy arrangements for children and disabled young people across England.

Horton C (2009) Creating a Stronger Information, Advice and Advocacy System for Older People, Joseph Rowntree Foundation Solutions, York. This paper is based on development work in Newcastle on improving ways of working with existing systems to make them more 'older person friendly', efficient, and effective for all concerned. Practical improvement learning is derived from initiatives within the Newcastle Advocacy Centre and local partnerships.

IRISS (2013) Advocacy: Models and Effectiveness The Institute for Research and Innovation in Social Services (IRISS). A concise research and practice review on the development and practice of advocacy in the UK. It draws on evidence in relation to advocacy with both children and adults and on literature from the fields of health and social care. The review outlines key elements to the most prevalent models of advocacy and identifies good practice, as well as the limitations of advocacy models. 

Lawton A (2009) Personalisation and Learning Disabilities: A Review of Evidence on Advocacy and its Practice for People with Learning Disabilities and High Support Needs. SCIE Report 24, London. This review identified a lack of robust ‘published’ research on the impact of advocacy and called for more research so that better estimates of cost-effectiveness and impact can be made.

Macadam A, Watts R and Greig R. (2013) The Impact of Advocacy for People who Use Social Care Services. NDTi/ NIHR School for Social Care Research Scoping Review. This review is derived from an evaluation of the impact of advocacy and finds an overall lack of robust evidence particularly in terms of its cost-effectiveness.

Rethink Mental Illness (2013) Advocacy. This factsheet forms part of an online resource that explains what advocacy is, why an advocate might be needed and how to find one.

Royal College of Psychiatrists (2012), Independent Advocacy for People with Mental Disorder, Royal College of Psychiatrists, London. This report updates and replaces an earlier document published by the RCP and provides information on what independent advocacy is and why it is needed.

Social Care Institute of Excellence (2010). SCIE Guide 31: Good practice guidance for the commissioning and monitoring of Independent Mental Capacity Advocate services. SCIE have a resource page for IMCAs.

Social Care Institute of Excellence (2009). At a glance 12: Personalisation briefing: Implications for advocacy workers.

Townsley R, Marriott A and Ward L (2009) Access to Independent Advocacy: An Evidence Review. Office for Disability Issues. This review draws on evidence related to people with mental health support needs, people with learning disabilities and people with physical/sensory impairments to evaluate the need, benefits and costs associated with independent advocacy for disabled people.

Newbigging K et al (2012) The Right to be Heard: Review of Independent Mental Health Advocate (IMHA) Services in England, University of Central Lancashire.

The following links to other legislation might also be useful:

Mental Capacity Act 2005

Data Protection Act

Human Rights Act


Handouts, exercises and case studies relevant to this topic area:

  • Handout: Substantial difficulty

  • Case Study: Mishal

  • Case Study: Adam

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