July Heart-to-Heart Updates From the Desk of

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July Heart-to-Heart Updates

From the Desk of

Mary J. Marin, Executive Director, Family Center

The Family Center is a section of the Children's Special Health Care Services (CSHCS) Division of the Michigan Department of Community Health (MDCH). CSHCS is part of MDCH’s Bureau of Family, Maternal and Child Health.

CSHCS primarily provides

medical specialty care to children with a qualifying diagnosis. The Family Center serves families of all children with special needs. The Family Support Network of Michigan (FSN) is the Family Center's parent-to-parent support arm.

Mary J. Marin

Executive Director
Lisa Cook-Gordon

Transition Consultant

Lisa Huckleberry

Training Consultant

Valerie Smith

Office Manager

Randy Krause

FSN Coordinator

Jean Rennie

Administrative Assistant

Dianna Rigato

CSHCS Program Specialist

Leah Waters


CSHCS Family Phone Line


8 a.m.-5 p.m., Monday- Friday

Events and resources are compiled by the Family Center from a variety of sources. A listing does not stand for endorsement.

Children’s Special Health Care Services (CSHCS) Division

A Word from Mary…

Children’s Special Health Care Services (CSHCS) is happy to announce some changes to our Lansing staff.

Celia Ainslie began working as one of the Departmental Technicians for Region Two of the Customer Support Section on May 17. Celia previously worked for Medicaid for over 27 years, with the last 10 as a lead worker in the Customer Service Division/Problem Resolution Section. Celia’s experience includes the processing of Medicaid eligibility, enrollments into health plans, resolving duplicate ID issues, and coverage issues for providers and clients. We know Celia will be a great addition to our staff!
Gale Sober began working as a General Office Assistant in Region One of the Customer Support Section on May 17. Gale has 33 years of experience with the State of Michigan. Her last seven years were as an assistant to the Bureau Secretary and Director for the MDCH Laboratories. When asked about joining CSHCS, Gale said “So far, so good, I really like working with the staff of CSHCS.” We are happy to have Gale working with us.
And, last but not least, Kristy Ferris and Melissa Flores have been promoted to new positions as CSHCS Departmental Technicians.
Welcome and congratulations to all four. Mary J. Marin

Relatively Speaking
The Family Center is planning the 2011 Relatively Speaking Conference (RS). This conference focuses on the issues of siblings of children with special health care needs. The needs of siblings are often misunderstood or not even recognized. In addition, the sibling relationship is often a longer lasting relationship than any other. Sharing their experiences and concerns is the first step in awareness that they exist. Relatively Speaking gives them the opportunity to meet other siblings in fun, age appropriate workshops.

We plan to have a sibling panel as one of the adult workshops. We are seeking four adult siblings of persons with special health care needs to participate.

The discussion will be led by Don Meyer, Director of the Sibling Support Project. You can get more information on the Sibling Support Project at http://www.siblingsupport.org. Don Meyer has presented at every Relatively Speaking Conference that the Family Center has facilitated and we fully support the valuable work that Don has done for families of persons with special needs. If you think you may be interested in participating as a panel member, or for more information about the sibling panel, please call Dianna at the Family Phone Line at 1-800-359-3722.

If you are currently receiving the Heart to Heart Memo in regular mail, please consider receiving it via email. This would allow us to save on postage and printing costs.

Call the Family Phone Line at 800-359-3722 to add email and delete “snail” mail.

Or, email Rigatod@Michigan.gov

Thank you
Three Opportunities……
As of June, 2010 there have been 21,024 children, ages one to twenty one, who have received a Song of Love. The Songs of Love Foundation is a non-profit organization dedicated to providing personalized songs for children and teens currently facing tough medical, physical or emotional challenges, free of charge. This unique service has been available since 1996. Songs are written and performed in any language in the musical style that the child likes best.

For more information, visit http://songsoflove.org/

Doors to colleges are opening for people with intellectual and other developmental disabilities in many different ways all over the country. The following website is designed to share what is currently going on, provide resources and strategies, let you know about training events, and give you ways to talk to others. The information is for transition aged students as well as adults attending or planning for college. It provides resources and tools for students, families, and professionals. Visit http://thinkcollege.net/. Information from Think College website.
Parent Leadership Trainings will be held in the Upper Peninsula and in the Detroit area this month.

July 12&13 in Marquette, MI. Monday 1 pm-8 pm, Tuesday 9 am-4 pm.

July 21&22 in Oakland County. Tuesday 1 pm.-8 pm, Wednesday 9a.-4 pm.

There is no cost to parents and meals will be provided. Parents will receive an honoraria for their time, mileage and child care reimbursement. For questions, please contact Sarah Wedepohl at swedepohl@me.com or 248-761-2553.

20th Anniversary of the ADA
With the signature of President George H. W. Bush on July 26, 1990, the Americans with Disabilities Act (ADA) became law. The ADA provides protections to individuals with disabilities similar to those provided on the basis of race, color, sex, national origin, age and religion. You can participate in 20th Anniversary celebrations this summer at various locations across the state including Kalamazoo, Lansing, Flint and Metro Detroit. Visit www.adamich.org for details as they become available.
United Cerebral Palsy of Metro Detroit Disability Network-Southwest Michigan

Detroit Metro Park Kalamazoo Valley Museum

July 10, Time: TBA July 25, Time: 1-5 pm

Contact: Leslynn Angel, 248-557-5070 Contact: Michele McGowan, 269-345-1516x116

www.ucpdetroit.org www.dnswm.org
Disability Network-Flint Capitol Area Center for Independent Living

Kearsley Park Pavilion State Capitol Building, Lansing

July 23, Time: 12-3 pm July 26, Time: 11am-3:30 pm

Contact: Vicki Sacharski, Contact: Al Swain, 517-999-2760

810-244-3281/810-742-1800 www.cacil.org


Happy Birthday America!

And the Star-Spangled Banner in triumph shall wave

O’er the land of the free and the home of the brave!

The Star-Spangled Banner” by Francis Scott Key

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